Join us for DSF's 2nd Biennial Conference in Coral Gables, Florida on June 23-26, 2016, at The Westin Colonnade, in collaboration with Nicklaus Children's Hospital.
This 3-day event is unique in that it is designed to unite all groups committed to improving the lives of those with Dravet syndrome - including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to date information impacting patient care. This event allows the opportunity to foster new relationships and collaborations, both for families and professionals.
We are pleased to announce that our keynote speaker will be Dr. Charlotte Dravet. Dr. Dravet is a French psychiatrist and epileptologist. She graduated from Marseilles University as a psychiatrist specializing in infantile neuropsychiatry. From 1965 to 2000 Charlotte Dravet worked in the Centre St. Paul at the University of Marseille, where Henri Jean Pascal Gastaut (1915-1995) and J. Roger were among her colleagues.
In her 1965 medical doctoral thesis, under Gastaut’s direction, she studied the epilepsy which would be later named the Lennox-Gastaut syndrome. She noticed that many of the children diagnosed with Lennox-Gastaut syndrome had different seizures and presentation. Dravet syndrome was first described in 1978 as "Severe Myoclonic Epilepsy in Infancy" (SMEI) by Dr Dravet. Since then, it has become better known as Dravet syndrome.
Her interests were focused towards the delineation of epileptic syndromes in childhood epilepsy, the psychological consequences of epilepsy, the progressive myoclonus epilepsies and their genetics, the congenital malformations of the offspring of epileptic women and related studies. Her main contribution was in myoclonia epilepsy with emphasis on benign and severe myoclonic epilepsies in infancy. The latter, Dravet syndrome, is now recognised as one of the most malignant syndromes at this age and is widely studied by other authors and clinicians as well as geneticists and researchers.
Dr. Dravet has been President of the French League Against Epilepsy and a member of the Commission on Classification of Epilepsies of the ILAE. She is also an Ambassador for epilepsy. She has participated in numerous congresses, lectures and is the author of a number of published works. Now retired, she continues to work in France and Italy to improve the care of people with epilepsy.
Pre-registration is required. Registration opens on February 1st and runs through June 17th. CME's are available for professionals.
This year, we will be replacing printed materials with a conference app that can be downloaded to your smartphone, tablet or computer. It will be available about 60 days before the event and will allow you to connect with other attendees, view sessions and speakers, as well as share information on social media during the event and receive important updates or last minutes changes in real-time.
We will once again offer conference pass sharing for families. Two parents or a parent and caregiver may share one conference registration if they are taking turns caring for a Dravet child onsite. Only one person per pass will be permitted in sessions at any one time.
Benefits to becoming a sponsor or exhibitor include reaching a wide audience of caregivers and professionals in the field of Dravet syndrome and related epilepsies.
Join us as a sponsor! Click here for sponsorship opportunities
Join us as an exhibitor! Click here for more information on becoming an exhibitor
Special thanks to Dr. Ian Miller for his assistance in planning this meeting.
The mission of Dravet Syndrome Foundation is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.
Contact Mary Anne at firstname.lastname@example.org