DAY OF DRAVET - NORTHEAST
Sheraton Bucks County - Langhorne
October 21, 2017
Dravet Syndrome Foundation’s (DSF) Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF’s shared vision for a better outcome for those affected by Dravet syndrome.
Please click on the Agenda tab at the top of this page for information on sessions as well as our evening family event.
The Northeast event takes place on Saturday, October 21 at the Sheraton in Langhorne, PA. We will offer a sibling camp with activities at Sesame Place for siblings 4 and older who are toilet-trained.
You are permitted to have your child with Dravet syndrome at sessions, but we ask that you are respectful of other attendees and remove your child if they are loud or disruptive. There is a hospitality room available where you can go with your Dravet child as needed.
Pre-registration is required.
Registration opens on August 1 and closes on October 13.
Special Thanks to our Northeast Ambassadors
Beth Fox - firstname.lastname@example.org
Wendy Fry - email@example.com
Because the intent of these workshops is to allow regional families to meet
and connect, and due to limited the capacity at each event, you may only register
for the event in your geographic region as designated in DSF's Family Network.
The regional map may be found at www.dsffamilynetwork.org.
Dravet Syndrome Foundation
PO Box 3026
Cherry Hill, NJ 08034
Questions? Contact Mary Anne at firstname.lastname@example.org